As the OpenNotes movement continues to grow, a broad variety of journalists, patients and health care professionals are taking note. Even better, they’re sharing the facts, data, opinions and experiences of those sharing medical notes. See what the buzz is all about.
In 2023, NYHealth selected 14 non-hospital systems from across the state for grants totaling nearly $800,000 to support them in sharing open notes effectively with patients. NYHealth has long supported the spread of open notes throughout New York State. Most recently, in response to the note-sharing mandate, NYHealth supported a cohort of 16 hospitals to go from good to great in their note-sharing and associated patient engagement.
Last week, Liz Salmi, a brain tumor patient, health services researcher, and a nationally-recognized patient advocate, delivered a compelling address at the White House Forum on Glioblastoma (GBM) & Diffuse Intrinsic Pontine Glioma (DIPG), underscoring the importance of transparency in healthcare and its positive impact on patients.
Tom Delbanco, MD, MACP, has been awarded the John Phillips Memorial Award from the American College of Physicians, a national organization of internists. Established by ACP’s Board of Regents in 1929, the award is bestowed for outstanding, lifetime work in clinical medicine that has been innovative and/or had a regional or national impact.
In a recent multisite survey of more than 8,000 patients who accessed their test results via an online patient portal account, researchers found that users overwhelmingly supported receiving the results immediately, even if their provider had not yet reviewed them.
While open notes have been the “law of the land” in the United States for more than a year, in England, adult patients accessing care through the National Health Service (NHS) will for the first time have access to their primary care record online starting Nov. 1, 2022. In this webinar, we will discuss what this development means for patients and GP staff in England.
Care partners are a critical, though informal, part of the healthcare system but are often not well supported by formal structures. OurNotes for Care Partners aims to identify care partners, assess their needs, and offer practical resources to alleviate stress and offer support through the Caregiver Intensity Index.
This work is in and of itself important. But we’re excited also by the transparent, collaborative partnership that Lewis formed with traditional/academic investigators. It offers a glimpse into the future evolution of important healthcare scholarship. Both the leadership and design principles behind the CREATE Trial signal a remarkable change in the culture of research.
OpenNotes is working on patient portal based solutions to help care partners & older adults get the information they need. We’re excited to invite other collaborators to join us in this effort.
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