OpenNotes has evolved since the first published study over a decade ago. Dr. DesRoches says the focus now is on enhancing the patient experience and ensuring that technology, like predictive and generative AI, is leveraged to address challenges related to diverse patient populations. Importantly, she asks, “how might we share documentation in a way that ensures success for patients, families, and clinicians?”
News from OpenNotes
Providence Tutorial Aims to Increase Shared Access for Care Partners
In recognition of National Caregiver’s Month, Providence has launched a new video designed to increase shared access to the patient portal. Through this video, patients and care partners can gain a clear understanding of the benefits of shared access as well as step-by-step instructions for granting shared access through Providence’s instance of MyChart.
Introducing How to Use Open Notes: A New Patient-Facing Resource from OpenNotes
OpenNotes is pleased to announce the launch of a new patient-facing resource, How to Use Open Notes. How To Use Open Notes aims to fulfill needs expressed by healthcare professionals for tools that facilitate discussions among patients, their families and clinicians about notes written in medical records (“open notes”).
14 New York State Non-Hospital Systems Receive Grants to Enhance Patient Note-Sharing
In 2023, NYHealth selected 14 non-hospital systems from across the state for grants totaling nearly $800,000 to support them in sharing open notes effectively with patients. NYHealth has long supported the spread of open notes throughout New York State. Most recently, in response to the note-sharing mandate, NYHealth supported a cohort of 16 hospitals to go from good to great in their note-sharing and associated patient engagement.
Liz Salmi Advocates for Transparency in Healthcare at White House Forum on Malignant Brain Tumors
Last week, Liz Salmi, a brain tumor patient, health services researcher, and a nationally-recognized patient advocate, delivered a compelling address at the White House Forum on Glioblastoma (GBM) & Diffuse Intrinsic Pontine Glioma (DIPG), underscoring the importance of transparency in healthcare and its positive impact on patients.
Tom Delbanco, MD, MACP, to receive national award from the American College of Physicians
Tom Delbanco, MD, MACP, has been awarded the John Phillips Memorial Award from the American College of Physicians, a national organization of internists. Established by ACP’s Board of Regents in 1929, the award is bestowed for outstanding, lifetime work in clinical medicine that has been innovative and/or had a regional or national impact.
Open Results: Patients overwhelmingly prefer immediate access to test results, even when the news may not be good
In a recent multisite survey of more than 8,000 patients who accessed their test results via an online patient portal account, researchers found that users overwhelmingly supported receiving the results immediately, even if their provider had not yet reviewed them.
Webinar Recording & Resources – Getting It Write: What To Do Now That Patients In England Can Read Their GP Notes
While open notes have been the “law of the land” in the United States for more than a year, in England, adult patients accessing care through the National Health Service (NHS) will for the first time have access to their primary care record online starting Nov. 1, 2022. In this webinar, we will discuss what this development means for patients and GP staff in England.
OurNotes for Care Partners Pilot Launches
Care partners are a critical, though informal, part of the healthcare system but are often not well supported by formal structures. OurNotes for Care Partners aims to identify care partners, assess their needs, and offer practical resources to alleviate stress and offer support through the Caregiver Intensity Index.
Patient researchers lead the way
This work is in and of itself important. But we’re excited also by the transparent, collaborative partnership that Lewis formed with traditional/academic investigators. It offers a glimpse into the future evolution of important healthcare scholarship. Both the leadership and design principles behind the CREATE Trial signal a remarkable change in the culture of research.
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