Being a care partner can be a deeply rewarding experience, but it also comes with unique challenges. How can health information technology ease some of this burden? Join OpenNotes, Johns Hopkins School of Public Health, and the Coalition for Care Partners for a free webinar that explores innovative ways to support patients and their care partners. Register now.
Blog
Information Blocking Rule includes ePHI starting October 2022
Starting on October 6, 2022, the definition of electronic health information (EHI) in the 21st Century Cures Act expanded beyond the United States Core Data for Interoperability (USCDI) Version 1 to all electronic Protected Health Information (ePHI) that a patient has the right to access under the Health Insurance Portability and Accountability Act (HIPAA). Read…
How to write an open note for patients: 2020 edition
By CT Lin, MD DENVER, CO – I am often asked, “What is the best way to participate in open notes and sharing physician progress notes with patients?” To answer this question, I created this one-page PDF guide. Feel free to use and share it—and please include attribution when you share. In Short: Don’t Panic!…
A Patient Perspective: Britta Bloomquist
Britta Bloomquist is a patient activist and member of the PFCCpartners National HIT Patient and Family Advisory Council (PFAC), which focuses on patient portals and electronic medical records as an impartial group of patients and families who are committed to improving the ability of technology to support the patient-physician relationship. How did you first learn…
Charlotte Blease, PhD, OpenNotes Keane Scholar
We are pleased to welcome Charlotte Blease, PhD as our newest Keane OpenNotes Scholar. Her background is in philosophy and interdisciplinary health research. Her work focuses on the ethics and relational benefits of note sharing, including therapeutic benefits to patients. Charlotte is also interested in how access to visit notes empowers the most vulnerable health…
Meet Maria Hägglund, Keane OpenNotes Scholar
OpenNotes is excited to welcome our first Keane OpenNotes Scholar, Maria Hägglund, PhD.
Visiting us from Sweden, she is an associate professor in health informatics and a senior lecturer in implementation science at the Uppsala MedTech Science & Innovation Centre. Her research is focused on user-centered systems that support collaboration and patient empowerment.
OpenNotes at the NIH Clinical Center
As of July 1, 2019, the National Institutes of Health (NIH) Clinical Center in Bethesda, MD, joined 200 other health systems in the OpenNotes movement and started sharing clinical notes with their patients. At the NIH, the practice is being adopted widely and, in addition to sharing outpatient notes, notes written to document the course…
OpenNotes in the News July 2019
Top Stories: Podcast: What happens when a patient gets access to their WHOLE medical record – A conversation with Cait DesRoches, DrPH and Liz Salmi of Open Notes, Touch Point Media Survey: 62% of patients value access to web-based visit notes when choosing a new provider, Becker’s Health IT & CIO Report Why You Should…
A Note From Cait July 2019
A recent analysis of more than 20,000 patients reading clinicians’ notes provided exciting insights into how patients believe reading notes impacts their use of prescription medications. I was pleased to lead that study and publish it at the end of May in the Annals of Internal Medicine, accompanied by an editorial by David Blumenthal,…
New Health Systems Now Sharing Notes
We’re excited to welcome the NIH Clinical Center and OCHIN to the OpenNotes movement: The National Institutes of Health Clinical Center, America’s research hospital, is located on the NIH campus in Bethesda, Md. Through clinical research, clinician-investigators translate laboratory discoveries into better treatments, therapies and interventions to improve the nation’s health. Currently, there are about…
