Benchmarking and developing personal eHealth services for Scandinavia
The NORDeHEALTH project
Personal eHealth, patient empowerment and self-management are topics that achieve a lot of attention internationally. Large resources are dedicated to designing, developing and implementing such services globally. Yet, we still have no clear picture of how contextual factors (such as technical infrastructure, organization of healthcare, reimbursement models and population characteristics) will impact implementation. How should one take these factors into account when implementing new programs?
The NORDeHEALTH project aggregates experiences and knowledge by studying personal eHealth services (PeHS) and patient access to their medical records in the Nordic countries in Europe. The project brings together partners from Sweden, Norway, Finland, and Estonia. In addition, OpenNotes represents the United States.
The NORDeHEALTH joint effort will increase the empirical evidence and establish a theoretical framework that helps explain how implementation of PeHS impacts different patient groups and healthcare, and how we can best evaluate and compare results across contexts.
NORDeHEALTH aims to:
- Study the current implementation and adoption of personal eHealth services (PeHS) in Nordic countries , thereby creating new knowledge and in-depth understanding of both challenges and opportunities
- Develop evidence-based valuation frameworks and guidelines to help researchers and practitioners within and beyond the Nordic countries evaluate PeHS and their acceptability, and support successful implementation and adoption of PeHS
- Explore factors around co-design of PeHS through innovation projects focusing on patient-generated data. In particular, they will develop best practice guidelines and evaluate tools for patients’ co-creation of the medical record (known as OurNotes in the U.S.).
Related articles
Nordic eHealth for Patients: Benchmarking and Developing for the Future, NordForsk
OpenNotes joins digital health collaborative in Northern Europe
Related publications
Patients’ access to health records , BMJ (2019)
Mobile Access and Adoption of the Swedish National Patient Portal, Studies in Health Technology and Informatics , Studies in Health Technology and Informatics (2020)
Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA , BMJ Open (2020)
NORDeHEALTH project team
Principal Investigator
Maria Hägglund, PhD, Associate Professor in Health Informatics, Uppsala University, Sweden
Co-Investigators
Cait DesRoches, DrPH, Associate Professor of Medicine, Harvard Medical School, Beth Israel Deaconess Medical Center
Charlotte Blease, PhD, Keane OpenNotes Scholar, Harvard Medical School, Beth Israel Deaconess Medical Center
Annika Bärkås, Åsa Cajander, Isto Huvila, Uppsala University, Sweden
Isabella Scandurra & Jonas Moll, Örebro University, Sweden
Sari Kujala & Iiris Hörhammar, Aalto University, Finland
Peeter Ross, Tallinn University of Technology, Tallinn, Estonia
Monika Johansson, Norwegian Center for eHealth Research, Norway
Rose-Mharie Åhlfeldt & Hanife Rexhepi, Skövde University, Sweden
Bridget Kane, Karlstad University, Sweden
Project contact
Project partners
Uppsala University (Sweden)
Örebro University (Sweden)
Skövde University (Sweden)
Tallinn University of Technology (Estonia)
Aalto University (Finland)
Karlstad University (Sweden)
Norwegian Centre for E-health Research (Norway)
OpenNotes (USA)
Funder
As part of the Nordic Council of Ministers, NordForsk provides funding for and facilitates cooperation on research and research infrastructure in the Nordic regions of Europe. www.nordforsk.org
Six research groups to develop digital solutions for the public sector , Nordforsk (2020)
