Venkataraman V, Martin-Giacalone BA, Drake BF, et al. Overcoming systemic barriers to make patient-partnered research a reality. Journal of Clinical Oncology. 2024
doi: https://ascopubs.org/doi/10.1200/JCO.24.00347
“Overcoming Systemic Barriers to Make Patient-Partnered Research a Reality” explores the challenges in integrating patient-partnered research within cancer genomics. This commentary emphasizes the need for direct participant engagement, a key goal of the NCI Cancer Moonshot initiative, which focuses on accelerating discoveries in rare and understudied cancers affecting diverse populations. The paper identifies barriers such as complex consent processes, fragmented health information systems, and lack of EHR interoperability. Proposed solutions include simplifying consent forms, leveraging technology for data sharing, and advocating for standardized EHR practices. Finally, the commentary calls for a research ecosystem that values patient contributions, ensuring participants’ voices are respected in advancing cancer research.
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