UPDATE: April Fools’! Thanks to all who laughed along with us for this announcement. In a bold move to restore the art of human connection in healthcare, OpenNotes is proud to announce its newest initiative: Retro Notes—a revolutionary program delivering medical records to patients the old-fashioned way: meticulously handwritten in calligraphy and flown to doorsteps via carrier pigeon.
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Identifying, Engaging, and Supporting Care Partners in Clinical Settings: Protocol for a Patient Portal–Based Intervention
This study aimed to implement a novel patient portal–based intervention to identify, engage, and support care partners in clinical settings. Early results suggest that the intervention could be an easily scalable and adaptable method of identifying and supporting care partners in clinical settings.
A Multisite Demonstration of Shared Access to Older Adults’ Patient Portals
In this quality improvement study of 16,005 patients from 3 diverse US sites, new shared access registration was unchanged; however, use of shared access functionality among registered care partners increased. Care partners logged in more frequently, viewed more laboratory results and clinical notes, and scheduled more visits after the demonstration.
Patients and families reading their discharge summaries: A cross-sectional analysis of benefits, concerns, and implications
Rapidly spreading information transparency could transform how patients engage in care and communicate with clinicians. Patients and families report benefits from reading discharge summaries; however, over a quarter reported a concern.
Advancing cancer care through digital access in the USA: a state-of-the-art review of patient portals in oncology
Patient portal use among patients with cancer has increased significantly in recent years. This state-of-the-art review seeks to address and analyse literature involving patient portal use by patients with cancer and their care partners.
OpenNotes Joins PCORI-Funded Study to Advance Equity in Health Research
Funded by a $2.1 million award from the Patient-Centered Outcomes Research Institute (PCORI), OpenNotes has joined an initiative led by researchers at the University of Colorado to study and improve methods of engaging diverse and historically underrepresented communities in health research.
Report by ASTP Identifies Ways to Help Clinicians and Patients Share Social Determinants of Health with Support from OpenNotes
Combined efforts by ASTP and OpenNotes take a close look at how SDOH data is collected and shared in healthcare settings in a way that feels helpful, respectful, and inclusive for both patients and clinicians.
Is Routine Discharge Enough? Needs and Perceptions Regarding Discharge and Readmission of Palliative Care Patients and Caregivers
This study investigated the hospital discharge process for palliative care patients and their caregivers, focusing on its patient-centeredness, discharge readiness, and links to readmissions.
Diagnosis in the Era of Digital Health and Artificial Intelligence: Proceedings of a Workshop—in Brief
How might AI, digital health technologies, and open notes transform diagnosis while addressing health disparities? Read highlights from the National Academies Forum on Advancing Diagnostic Excellence.
Guidelines for Patient-Centered Documentation in the Era of Open Notes: A Qualitative Study
This study by Vanka, et al, presents 10 guidelines for patient-centered medical documentation, emphasizing respect, clarity, and inclusivity in clinical notes. These principles aim to empower patients, improve trust, and enhance medical education on open notes practices.
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