Rapidly spreading information transparency could transform how patients engage in care and communicate with clinicians. Patients and families report benefits from reading discharge summaries; however, over a quarter reported a concern.
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Advancing cancer care through digital access in the USA: a state-of-the-art review of patient portals in oncology
Patient portal use among patients with cancer has increased significantly in recent years. This state-of-the-art review seeks to address and analyse literature involving patient portal use by patients with cancer and their care partners.
OpenNotes Joins PCORI-Funded Study to Advance Equity in Health Research
Funded by a $2.1 million award from the Patient-Centered Outcomes Research Institute (PCORI), OpenNotes has joined an initiative led by researchers at the University of Colorado to study and improve methods of engaging diverse and historically underrepresented communities in health research.
Report by ASTP Identifies Ways to Help Clinicians and Patients Share Social Determinants of Health with Support from OpenNotes
Combined efforts by ASTP and OpenNotes take a close look at how SDOH data is collected and shared in healthcare settings in a way that feels helpful, respectful, and inclusive for both patients and clinicians.
Is Routine Discharge Enough? Needs and Perceptions Regarding Discharge and Readmission of Palliative Care Patients and Caregivers
This study investigated the hospital discharge process for palliative care patients and their caregivers, focusing on its patient-centeredness, discharge readiness, and links to readmissions.
Diagnosis in the Era of Digital Health and Artificial Intelligence: Proceedings of a Workshop—in Brief
How might AI, digital health technologies, and open notes transform diagnosis while addressing health disparities? Read highlights from the National Academies Forum on Advancing Diagnostic Excellence.
Guidelines for Patient-Centered Documentation in the Era of Open Notes: A Qualitative Study
This study by Vanka, et al, presents 10 guidelines for patient-centered medical documentation, emphasizing respect, clarity, and inclusivity in clinical notes. These principles aim to empower patients, improve trust, and enhance medical education on open notes practices.
OpenNotes Study Aims to Mitigate Scanxiety & Misinformation in Cancer Care
Led by OpenNotes, the study, “Mitigating Misinformation & Scanxiety for Cancer Patients,” focuses on reducing the stress and confusion patients may face when receiving medical test results electronically before having the opportunity to discuss them with a clinician.
OpenNotes and ASTP Study Reveals Pathways to Overcoming Barriers to Sharing Sensitive Social Determinants of Health Data
New research identifies promising strategies to enhance transparency, build trust, and standardize the collection of social determinants of health data.
Gaps in the coordination of care for people living with dementia
This study examines care coordination breakdowns reported by patients living with dementia (PLWD) or their care partners. Interventions to improve communication across different care teams are needed to minimize the harmful effects of gaps in care coordination.
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