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Research
- U.S. Research
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- - EHR Proxy (Shared) Access
    Engaging family care partners through shared access to the electronic health record.
  - Educating Young Health Professionals
    Teaching medical students to offer open and transparent communication.
  - NYHealth Foundation OpenNotes Collaborative
    Bringing open notes to a broad variety of patients in New York State.
  - Patient Priorities Care
    Testing an online questionnaire designed to help patients prioritize complex health issues
- - Patient Safety
    The OurDiagnosis (OurDX) Project is an online tool that searches for potential diagnostic breakdowns in ambulatory care.
  - Medical Records: Documenting the Social Determinants of Health
    Access, exchange and use of Social Determinants of Health (SDOH) data in clinical notes.
  - MyDischarge Summary
    Testing a scalable solution to improve transitions from hospital to home with a feedback tool for patients and families.
  - OurResearch: Patients and Investigators Asking Questions Together
    Low Grade Glioma Registry and OPTIMUM: Studying trust in genomic research.
- - OurNotes
    “OurNotes” asks clinicians and patients to create notes together.
  - Open Results
    Patients and investigators determining optimal methods for releasing test results.
  - International Research
  - International Cross-Comparisons
    Studying effective implementations of transparent records in Sweden, the U.S., and beyond.
  - Nordic eHealth for Patients (NORDeHEALTH)
    Benchmarking and developing personal eHealth services for Scandinavia.
Lab
- Where patients, notes and AI meet
- - About the OpenNotes Lab
    The OpenNotes Lab is an environment to test new initiatives in partnership with clinicians, patients and developers.
  - OpenNotes Lab Partners & Advisors
    We work closely with technology developers, health systems, patient advocates, and regulatory agencies.
- - Large Language Model Translation Learning Collaborative (LLM TLC)
    We're focused on making healthcare more accessible and equitable through language translation tools.
  - OpenNotes Lab Insight Panel
    Made up of patients, care partners, and clinicians, the Insight Panel helps the Lab co-design research and evaluate emerging technologies.
Education
- Everything healthcare professionals need to know about open notes
- - Sharing Notes with Patients: The Basics
    A toolkit for implementing open notes effectively.
  - Communicating About Open Notes
    Materials for communicating with staff, clinicians, patients, and the public.
  - Sharing Pediatric Notes
    Access to notes allows families to manage care and helps children become more engaged in their own health.
  - Sharing Notes with Adolescents
    Access to notes empowers adolescents to manage their health care with more independence.
- - Care Partners
    Look at how open notes can be useful to both patients and care partners.
  - Open Notes for Mental Health Clinicians
    How open notes can be a powerful tool in mental health therapy.
  - Open Notes for Safer Care
    Improving patient safety through transparency.
  - Webinars
    Learn more about the research behind the sharing of clinicians’ notes with patients.
About
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- - About OpenNotes
    Learn more about the OpenNotes organization.
  - OpenNotes Team
    Our team is made up of doctors, nurses, social scientists, health services researchers, and patient advocates.
  - Supporting OpenNotes
    Generous individuals and philanthropies dedicated to improving health and care have supported OpenNotes.
  - History
    Our History: Fifty Years In the Making.
  - Public Policy
    Government policies dictate how much access and control you have when it comes to medical records
- - U.S. Federal Rule Mandates Open Notes
    Learn about the federal rule on Interoperability, Information Blocking.
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For Patients
- - How To Use Open Notes
    
    This mini-site features all OpenNotes' patient-facing information in a convenient and easy-to-navigate format in English and Spanish.
    
    Visit How To Use Open Notes

MEDINFO

Advocating for Healthcare Transparency at an International Scale

In the presentation, Liz Salmi discusses the transformative impact of the OpenNotes initiative, beginning with a 2012 study showing significant benefits for patients and care partners and no major changes for clinicians, and concludes with the impact of the 21st Century Cures Act in the U.S., which vastly expanded patient access to their medical information.

Tagged With: liz salmi, MEDINFO

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NEW WEBINAR

Getting It Write: What To Do Now That Patients in England Can Read Their GP Notes

Tuesday, November 1, 2022 | 8am Pacific Standard Time (PST)
11am Eastern Standard Time (EST) / 3pm Greenwich Mean Time (GMT)

While open notes have been the “law of the land” in the United States for more than a year, in England, adult patients accessing care through the National Health Service (NHS) will have access to their primary care record online for the first time starting Nov. 1, 2022.

In this webinar, we’ll be joined by open notes experts and discuss what this change means for patients and general practitioner (GP) staff in England.

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