David Baldwin wasn’t sure how he had come across the other day in group therapy at the hospital, near the co-op apartment where he lives with his rescue cat, Zoey. He struggles with bipolar disorder, severe anxiety and depression. Like so many patients, he secretly wondered what his therapist thought of him. But unlike those…
patient's story
Boston Globe: Doctors, Patients, and Computer Screens
“A woman in her 60s comes in for her annual physical. She feels fine. Still, there are things she’s eager to discuss with me. She’s terrified she’ll again come down with the illness that put her in the hospital a couple of years ago. Her kids are an ongoing source of stress. I turn my…
WTMJ-Channel 4: OpenNotes on the Morning Blend
Dr. Marc Horneffer of Columbia St. Mary’s and his patient, Diane Swietzer, discuss OpenNotes on the Morning Blend:
Healthcare IT News: Voice of the Patient
What happens when patients get involved? Better outcomes. In a Healthcare IT News cover story, transparency “pioneers” discuss why we need to give patients access to all their health information.
e-patient’s Dave’s Blog: Beth Israel Deaconess FAQ for their patients reading OpenNotes
By Dave deBronkart On Wednesday I posted about the roll-out of OpenNotes to over a million patients and families. That post arose when I myself got notified that Beth Israel Deaconess (my primary hospital) was activating OpenNotes – and they published a Frequently Asked Questions document. Read the full post on e-Patients.net
e-patient’s Dave’s Blog: The OpenNotes project goes wide: a million patients and families enabled by information!
By Dave deBronkart Big news is emerging from the OpenNotes® project: big institutions are making patient access to the medical record Standard Operating Procedure. For the first time, an unprecedented number of patients and families – over 1.3 million so far – are enabled to take a big step toward full partnership in their care, by having access to…
Advisory Board: In Record Time: How an EHR Changed My Patient Experience
I’ll be the first to admit it, I was a bit put off when the receptionist said, “You need to call back the day you’d like to see the doctor.” With such short notice would I even get to see my new family doctor, or would I be triaged to one of his colleagues? Given…
Health IT.gov Clinical Documentation Hearing: Testimony from an OpenNotes Patient
Candice Wolk, a patient in the OpenNotes study, presented testimony at the Clinical Documentation Hearing held in Washington, DC. Candice shared her personal story of how OpenNotes equipped her to be her own health-care advocate. Read Candice’s testimony below: Dear Health IT Policy Committee members, My name is Candice Wolk. I am humbled by…
The New York Times: Letting Patients Read the Doctor’s Notes
The patient, a wiry businessman in his 50s, needed a copy of his medical records to bring to a specialist for a second opinion. He assumed that getting the copies would be straightforward; the records were, after all, his. But after multiple trips to his doctor’s office and the hospital and several days of missed…
Annals of Internal Medicine: A Patient’s View of OpenNotes
When I was young, most doctors refused to tell terminal patients that nothing more could be done. They would lose hope, the rationalization went. Anxiety or depression would make them suffer more than ignorance. No one, of course, wants to be the messenger of death or face the slippery slope that candor can evoke—painful discussions…
